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Share Your Story
Community is about sharing, supporting each other, and having a voice. This is where
you can be heard in an open forum on topics that are important to you. You’ll find hope, insight, answers, and the awareness that if you are suffering from lupus, you are not alone. We invite you to share your own story and take part in the discussion.
Join in. We’re listening.
The U.S. Department of Health and Human Services’ Office on Women’s Health hosts this discussion forum for registered users to discuss lupus and lupus-related issues. This is a moderated online space. Please treat each other with respect. We will not post comments that violate the Terms of Use for this website. Please also review our Privacy Policy.
The information posted by individuals on www.couldihavelupus.gov represents personal experiences and is not meant to provide medical diagnosis or advice, or to take the place of health care or services you may need. Please see your primary health care provider about any personal health concerns. Please refer to our Disclaimer and Linking Policy regarding user-posted content and links.
Today I couldn't stop urinating. At least 15 or better times this day. Tonight I am in so much pain from eating that I don't know what to do....[more]
Read moreI have been sick with weird, unexplainable symptoms for the past 2 years or so. All my tests come out Perfect as I am told. Symptoms are so unusual that the best explanation is to go back to my old phsychiatric record and name it depressi...[more]
Read moreHi, I'm fifteen. I have several of the symptoms of lupus (sleeping problems, i.e. I'm either always tired and sleep for twelve+ hours or don't sleep for several days at a time, I get odd pains in m chest sometimes that come and go ...[more]
Read moreHello. My name is Nicole and I'm a black woman. I just turned 36 two weeks ago....[more]
Read moreMy issues started about 4 months ago with pain in the tops of my feet. Any shoes I wear make the pain worse. Then pain then spread to my ankles, knees, elbows, hands and fingers....[more]
Read moreI knew something was very wrong for at least the past 4 years and 6 months ago when the rashes started I knew for sure that I have Lupus. I have every symptom and more. My grandmother had Lupus and died a few years ago....[more]
Read moreI have been having on going problems for the past 6 years. I can relate to some of the symptoms of lupus.I thought it was menapause symtoms that I was going through.My ANA test came back slightly under normal. Now I'm stressed out thinki...[more]
Read moreHi my name is Cielo, I always had a an Explanable body ache and flu sympton for almost 1 yr, and half, then my doctor finally order a series of lab works, and my ANA came out positive is that's means I have lupus.
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Read moreHello everyone. My name is Jan. I'm 35 and have been struggling with lupus symptoms for almost 10 years now....[more]
Read moreI was diagnosed with lupus last May. My lupus symptoms started with the rash on the face, arms, and chest. This made it hard to diagnose because rashed are caused by several different things....[more]
Read moreHey everybody!
My lupus was diagnosed 1,5 years ago. It startet with a rash on my abdomen around spring time and got worse during summer (red and itchy). I went to see my dermatologist....[more]
Read moreIf i'm going to an endocrinologist for my hypothyroidism and seeing my gyno for my PCOS, can I ask either of them to test me for Lupus or do I need to see another specialist? After reviewing the symptoms, I feel I should be tested for it...[more]
Read moreDo any of you have the Lupus Rash on Your Nose,Cheeks, Sometimes Forehead Chin, And I even Look Like I Have A Red Mustache, It Is Sooo Irritating And Embarrasing ?...[more]
Read moreI have been having problems for over a year with regard to a rash and swelling around my eyes. I have only tested positive to nickle. But the dermatologist asked me if I had been tested by my primary care MD for Overlappign Connective Tis...[more]
Read moreI have a serious issue here, I was pregnant with my son in 2002 and was diagnosed with lupus and was on IV/IG therapy for the last half of my pregnancy and heprin on the first half. I have EXTREMELY low platelets. I thought and was told it...[more]
Read moreI'm a 33 yr old female. For years now I've been struggling with low energy levels, debilitating headaches and constant yeast and bacterial infections. I stay out of the sun because it drains all my energy, and I recently developed a r...[more]
Read moreGreetings! I am a 35 year old female. Last year I started noticing that my gums were swollen....[more]
Read moreI'm a generally healthy, 43 year old with a history of hypothyroidism. My nightmare started this past April with shortness of breath and chest pain. This lead me to the ED only to be admitted overnight as an observation patient in the ...[more]
Read moreHi everyone. I have had some symptoms for quite awhile, and I just wanted some opinions on whether or not it could be Lupus. I have been suffering from low back/hip/knee/shoulder pain for the better part of 3 years....[more]
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