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Community is about sharing, supporting each other, and having a voice. This is where you can be heard in an open forum on topics that are important to you. You’ll find hope, insight, answers, and the awareness that if you are suffering from lupus, you are not alone. We invite you to share your own story and take part in the discussion.

Join in. We’re listening.

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Ouch! IT really Hurts! By Susan Again 02/21/2012 10:02:16

Today I couldn't stop urinating. At least 15 or better times this day. Tonight I am in so much pain from eating that I don't know what to do....[more]

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Help I am Sick By Susan 02/21/2012 11:02:32

I have been sick with weird, unexplainable symptoms for the past 2 years or so. All my tests come out Perfect as I am told. Symptoms are so unusual that the best explanation is to go back to my old phsychiatric record and name it depressi...[more]

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I Have Symptoms .. By Tanya 02/21/2012 05:02:17

Hi, I'm fifteen. I have several of the symptoms of lupus (sleeping problems, i.e. I'm either always tired and sleep for twelve+ hours or don't sleep for several days at a time, I get odd pains in m chest sometimes that come and go ...[more]

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Tired of being sick all the time By Nicole 02/19/2012 06:02:16

Hello. My name is Nicole and I'm a black woman. I just turned 36 two weeks ago....[more]

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Scared and Exhausted By Margie 02/18/2012 11:02:20

My issues started about 4 months ago with pain in the tops of my feet. Any shoes I wear make the pain worse. Then pain then spread to my ankles, knees, elbows, hands and fingers....[more]

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Scared By Katie 02/16/2012 05:02:01

I knew something was very wrong for at least the past 4 years and 6 months ago when the rashes started I knew for sure that I have Lupus. I have every symptom and more. My grandmother had Lupus and died a few years ago....[more]

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lupus By Linda 02/15/2012 06:02:16

I have been having on going problems for the past 6 years. I can relate to some of the symptoms of lupus.I thought it was menapause symtoms that I was going through.My ANA test came back slightly under normal. Now I'm stressed out thinki...[more]

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Lupus By Cielo 02/05/2012 06:02:46

Hi my name is Cielo, I always had a an Explanable body ache and flu sympton for almost 1 yr, and half, then my doctor finally order a series of lab works, and my ANA came out positive is that's means I have lupus.

...[more]

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What else could it be? By Jan 01/27/2012 01:01:32

Hello everyone. My name is Jan. I'm 35 and have been struggling with lupus symptoms for almost 10 years now....[more]

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When Does it Start Feeling Better? By Stacey Bowman 01/26/2012 09:01:04

I was diagnosed with lupus last May. My lupus symptoms started with the rash on the face, arms, and chest. This made it hard to diagnose because rashed are caused by several different things....[more]

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Belly rashes By Mona 01/26/2012 09:01:58

Hey everybody!

My lupus was diagnosed 1,5 years ago. It startet with a rash on my abdomen around spring time and got worse during summer (red and itchy). I went to see my dermatologist....[more]

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Who do I ask? By 2young4this 01/25/2012 05:01:12

If i'm going to an endocrinologist for my hypothyroidism and seeing my gyno for my PCOS, can I ask either of them to test me for Lupus or do I need to see another specialist? After reviewing the symptoms, I feel I should be tested for it...[more]

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Lupus Facial Rash By Fallen Angell 01/24/2012 06:01:57

Do any of you have the Lupus Rash on Your Nose,Cheeks, Sometimes Forehead Chin, And I even Look Like I Have A Red Mustache, It Is Sooo Irritating And Embarrasing ?...[more]

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How difficult it is to be diagnosed? By Andrea G 01/21/2012 01:01:10

I have been having problems for over a year with regard to a rash and swelling around my eyes. I have only tested positive to nickle. But the dermatologist asked me if I had been tested by my primary care MD for Overlappign Connective Tis...[more]

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Please Help, Need Answers FAST By Jaime Berdy 01/19/2012 06:01:12

I have a serious issue here, I was pregnant with my son in 2002 and was diagnosed with lupus and was on IV/IG therapy for the last half of my pregnancy and heprin on the first half. I have EXTREMELY low platelets. I thought and was told it...[more]

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Could It Be Lupus? By Tiff78 01/16/2012 01:01:42

I'm a 33 yr old female. For years now I've been struggling with low energy levels, debilitating headaches and constant yeast and bacterial infections. I stay out of the sun because it drains all my energy, and I recently developed a r...[more]

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Is there a cure By Trinh 01/12/2012 03:01:01

Is there a cure?...[more]

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Could this be lupus? By Mary M 01/11/2012 06:01:33

Greetings! I am a 35 year old female. Last year I started noticing that my gums were swollen....[more]

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Is it Lupus? By Tracy A. 01/09/2012 01:01:49

I'm a generally healthy, 43 year old with a history of hypothyroidism. My nightmare started this past April with shortness of breath and chest pain. This lead me to the ED only to be admitted overnight as an observation patient in the ...[more]

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Possible Lupus? By Derek 01/04/2012 05:01:34

Hi everyone. I have had some symptoms for quite awhile, and I just wanted some opinions on whether or not it could be Lupus. I have been suffering from low back/hip/knee/shoulder pain for the better part of 3 years....[more]

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