I was on coumadin, a mediaction given to some dialysis/Lupus patients . Do to all the blood problemsLupus patients have with clutting . The blood can get too thin or too thick from day to day. I had to be really careful. If i got into a car accident , i could bleed to death. if i hit my leg on the side of the bed was dangerous and had to be very careful. No one could believe I have been on dialysis for 13 years.
Lupus also causes antibodies, which makes getting a kidney or any other organ nearly impossible. Lupus also made me very anemic . Everytime , Lupus was at it's worst i would become very anemic and getting a transfusions (blood) was a normal thing. That meant more antibodies. Putting all these things together it made getting a transplant extremely difficult.
I have had (i think) at least thirteen different places on my body used for dialysis. That is with all the revising. Patients, use one spot for the whole time they are on dialysis. Some maybe 3 or 4 different spots. Me, with my Lupus and it's many symptoms and causes had way more then my normal share. I had been told by my doctors there was nothing else they could do for me. It did not seem a though i would get a kidney.
I only had one more place that was possible to get dialyses. It just seemed so unfair. There were so many times i just wanted everything to be over. I just could not see another dialysis machine,or needle . i did not want to have any more pain. I had held on for so long. Hopeing even longer . It seemed it was all for nothing.. just wanted to be free of it all. if i could just hold on a bit longer. But, all wishes were used, all hope gone . I cried almost everytime i went through dialysis ,sadness just did not leave me. Until...
On early Jan 2008 i received a kidney !! Talk about at the last second. No one ever believed it possible. I guess sometimes miracles do happen!!!
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