Being Diagnosed with Lupus07/10/2008 07:07:33
I am a 34 year old woman living in West Los Angeles and have been living with Lupus for 19 years. I was diagnosed at the age of 15 and was fortunate for my diagnosis. I was fortunate because a doctor saw symptons when I went in for a bladder infection and told my parents that they should take me to see a Lupus Specialist. So many people go for months and years without having a diagnosis, at least for me I knew what was wrong with me instead of being told by the doctor that there was nothing wrong. Something was wrong, I was incredibly tired, my face was bright red and I was a busy high school student barely able to keep up with all of my activities that had before been something I could balance. So I was fortunate for my diagnosis because at least at this point in my life at age 15 I could now prepare for living with the disease instead of spending countless doctor visits being told there was nothing wrong. I have heard so many others with Lupus tell me that they had doctors telling them they must be imagining the symptons they were having and that there was nothing wrong with them.
So being diagnosed was a step towards then accepting the illness and then learning to live with the illness which was a whole different task to take on in life. No one quite understands the fatigue that a person with Lupus suffers from. No one quite understands the endless doctor appointments and the day to day living with the illness of not knowing what is coming next . I am so elated to see articles about young people being diagnosed in today's world of 2008 and being able to do so much more in life. The progress that has been made in the treatment of this disease is encouraging for the next generation behind me, there seems to be hope that maybe a cure is somewhere down the road. When I was first diagnosed with the disease I was not given a good prognosis, now I see young people really living with the illness and making it. That brings tears to my eyes, I am very happy to see this progress.
Now, life with Lupus in my 30s is getting tougher but I always remember back to being diagnosed with the illness and how fortunate to that doctor that recommended I go see a specialist so that they could tell me what was wrong and start treatment on me.
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