it is what it is07/17/2008 12:07:32
Some days or even weeks with Lupus are difficult.....period. Sometimes I'm really good at rolling with the punches, the last few weeks I;m not.
There is so much I want to do with my life, even something so benign as going shopping takes it's toll. Most if not all people with Lupus has sun sensitivity.
I'm one of those people even a little too long in the sun will make me very sick.. To go around the block from my home to the grocery store I must put on special sunblock, a hat, glasses and a specially treated cover-up to block the sun, and gloves even in the summer. I'm driving not walking,
it's a lot of steps to make sure I'm covered because the sun exacerbates the Lupus. When I feel sorry for myself, I think of others that are disfigured by Lupus (discoid) or those that have kidney involvement ( i do but it;s not that bad). It is what it is........... Someday, I hope in my lifetime there is a cure ............Life without Lupus
I met two wonderful women in the store, I went to a different store out of my nieghborhood and we got to talking and her friend has Lupus. Small world, large hearts turned out to be a great day after all.
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