23 with Lupus08/20/2011 10:08:12
After a long journey of not knowing and pain I've just received my diagnosis this week with systematic lupus. Two of my paternal aunts have lupus as well, one alive living with lupus for over 20 years, and the other died at only 16 from lupus complications. I know this journey will be hard and will be apart of the rest of my life. But I refuse to let it get me down. Through my pain I smile, through my bad days I smile, and even when I'm at the brink of tears I find comfort in the fact that I'M ALIVE! It could be worse! This disease is not easy to deal with Its an uphill battle and its hard for others to understand. For months people didn't realize the severity of my pain and that itself was quite frustrating. Now I'm educating myself more and more so that I can educate them! I just ask God for the strength to live with and cope with this disease. My Predisone dosage has been increased and I have to go for IV treatment 3 times a week This comes right after losing 30 pounds this summer I fear gaining alot of weight but if that is to happen I will adjust just as I'm attempting to adjust back to the youthful active young woman I was before this disease hit me! I have the power over my life, not this disease! Stay encouraged!!!!!! We will WIN the battle!
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